Peer-reviewed · Biology · 2026
Why Should a Genome Be Protected? Ethical, Legal, and Security Challenges in the Protection of Genomic Data
This review examines the ethical, legal, and security challenges of protecting genomic data. It argues that falling sequencing prices and commercial genome testing raise ethical and privacy risks, and that online genomic datasets need a balance between biosafety oversight and the right to privacy.
Szalata et al.
This review examines the ethical, legal, and security challenges of protecting genomic data. It argues that falling sequencing prices and commercial genome testing raise ethical and privacy risks, and that online genomic datasets need a balance between biosafety oversight and the right to privacy.
Dante Labs’ involvement
Dante Labs did not carry out any laboratory work, sequencing, or analysis for this study. This paper discusses Dante Labs (New York City, United States) as an example of a private company offering genome sequencing and analyses, noting that it states that it does not sell personal or genomic data, and that customers can enter, delete, or anonymise their data at any time, in accordance with the USA Health Insurance Portability and Accountability Act (HIPAA) and European General Data Protection Regulation (GDPR) guidelines.
The paper's reference list cites two Dante Labs web resources: the company's website ('Dante Labs Discover Your Genome') and its blog post 'Your Genome Under GDPR: Why EU Data Protection Is the Gold Standard for Genetic Information'.
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